In a previous post, I wrote about the alphabet soup of organizations working to find new treatments for Alzheimer’s. Much less well-funded and well-publicized are the organizations and people working to find new ways to care for people with dementia.
Earlier this month, several people at the cutting edge of this work came together in snowy Rochester, New York to share ideas and to make a video. A big thank you to Richard Taylor for inviting me to take part, and to Al Power and St. John’s Home for hosting all of us so graciously.
Judy’s husband Julius Keya is the videographer for this project. Originally from Kenya, he is a talented videographer who has traveled the world working on human rights documentaries. Julius also filmed and edited a video of Richard and Al speaking at St. Cloud University – you can email him at firstname.lastname@example.org to purchase it.
If I had to pick one theme for our discussions in Rochester, it would be how to design care around the needs of each person with dementia, instead of around the needs of an institution or the prescriptions of “experts.” Underpinning that theme was the incredible level of personal caring I saw in Richard, Al, Sarah, Judy and Julius, the people at St. John’s and in the Rochester community.
I’ll write more about some of their individual efforts in future posts.