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September 02, 2010

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richard taylor

Hello, and so money talks louder than the cheerleaders, researchers, and press releases that continually support fund raising efforts both private and public, and serve to create false hopes in the hearts and minds of those living with dementia.

It's just not right that that those who should know the most about dementia, those who claim a leadership role, those who claim to be protecting the best interests of people with dementia and those living with people with dementia = many of these leaders/spokespersons have become advocates for spending more money, quicker on research based upon "breakthroughs" "new insights" etc. when in fact there have no breakthroughs, when in fact long held theories of the cause of dementia are discredited by the results of drug trials based upon the theories.

When will this madness stop? When will everyone reorder their priorities and begin to focus on psycho social research that seeks to find evidence based solutions to the everyday problems of those living with the symptoms of slipping cognitive functions? When will we stop funding crowds of researchers rushing up blind allies in the hopes finding a cure for something we have yet to all agree on what it really is, and what really causes "it"?

Madness is doing the same things over and over again and expecting different results - thats where research is right now on dementia.

Everyone, stop what you are doing. Right now. Let's have a National conversation on what is the right thing to do next. Let's listen to people who actually have the symptoms, rather than only to people who don't have the symptoms, and want to all all costs avoid getting them.

Richard


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