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December 04, 2008

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David Thomas

Thank you for this post. I am becoming more impressed with your blog each time I get your daily subscription!

This is a very informative and well thought out blog. You are very conscientious. I highly recommend that others subscribe to the blog daily.

David Thomas MD
http://knittingdoc.wordpress.com

kay Bogart

My husband was diagnosed at 58 with AD. Just a few months ago his new dr. told me that it is more likely that he has Lewy Body Dementia. I asked what the difference was and she told me to look it up on the internet. Since I did so much research on AD, quite frankly I'm pretty worn out. He has been bed bound for about 4 months now. He can no longer walk and hasn't talked in several years. I will keep on looking, but can anyone give me any information on the differences?? Jerry was also treated with various drugs for agitation during the last few years which did not seem to help, quite the reverse. He is on virtually no meds right now. Thanks.

Mona Johnson

Kay,

I'm sorry you and your husband are going through this. I wrote a bit about the symptoms of and treatment for Lewy body dementia in the reports linked to in this post. You might also contact the Lewy Body Dementia Association (www.lbda.org)for detailed information and to find out if there are support groups in your area.

Carolyn L. Cooper-Brown

My husband was diagnosed with Lewy Body Disease two years ago. He has stopped driving the past year and has started not remembering where he is in the home. I still work a couple days a week but need a caregiver. Would he be better at a senior care facility during the day or have a caregiver in the home.
thanks.

Mona Johnson

Hi Carolyn,

I would think the decision of facility-based care vs. home-based is very individual. Does your doctor have an opinion on this? You might try talking with the Lewy Body Dementia Association (www.lbda.org) to see if they can offer advice. They have online support groups where other caregivers might be able to tell you about their experiences with different types of care. They may also have a local support group in your area.

I hope this is helpful, and that the option you choose works out well for you.

Mona

Muriel Arms

My husband was officially diagnosed with LBD a year ago. He also has congestive heart disease, diabetes, and is on 24/7 oxygen. I also work two days a week. He attends Day care twice a week and I find that those two days give him the social activity that he needs. At home he generally just sleeps in his chair no matter what activity I try to do with him.
Muriel

Steve Davis

My mom has had demetia for severalyears. My wife and I suspected early it was not classic alzheimers. She had some memory issues but her main symptom was wild and detailed delusions. So convincing we had to verify things to make sure they were not real. Soon they got extremely bizzar and most were paranoid in context. We started to suspect DLB and were eventualy sure. She eventualy was hospitalized for phycotic delusions. The facility does not seem to be able to explain to me why she does not have LBD. They do not seem interested in my opinion which seems odd for I have been monitoring her for 5 years. How does one find the right Dr.?

Mona Johnson

Steve,

I'm sorry to hear about your mom. I suggest you contact the Lewy Body Dementia Association for assistance and a referral (www.lbda.org).

Take care,

Mona

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