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December 16, 2008

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Natalie

Hi,

It sounds like you and I have a few things in common. My father too has a dementia (had it for 10yrs) and I have been looking for answers for years too. Like you it is too late for my Dad now, but I still like to research the topic and started my own blog, (see URL). Anyways I have linked to your blog, and am commenting on here to let you know, just in case you object to that. If you do, just write me back and I will remove the link.
Best wishes,
Natalie

Richard

I too have some balance problems, and the possible connection between that and my memory deficits was the principle reason it took over a year before my neurologist would give me any sort of diagnosis. He too was sure there was a connection. In fact, I ended up having a nerve biopsy that of course proved inclusive. I am just lucky enough to peripheral neuropathy in my feet and legs and dementia, probably of the Alzheimer's type. The fact that some folks feel, see, and think there is a connection and physical therapy seems it improves their dementia symptoms is further proof of how traditional ways of self report by the patient and their caregivers is sometimes colored by their wishes, sometimes impacted by the strength of their beliefs.
The brain is an amazing organ. I am not sure we will ever be able to use it to understand itself to the degree that we too can understand it.

This site, you continue to be a beacon of clarity in the fog of press releases that make up the world of research into dementia. Thank you again, and again and again for your efforts. You are truly an angel for all of us.

Richard

Valerie

I am a caregiver for my god-sister who is 82 years old. She has dementia and severely impaired motor functions. When she first had her stroke, we tried so hard to get her to do her physical therapy and exercises but it was worse then pulling teeth.

When she regained enough motor skills to feed herself and take care of basic hygiene, she would no longer do any type of therapy or exercise. We try to get her to understand that it will help her. I don't know if she forgets or she doesn't care.

Thanks for the post, best wishes with your dad.

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