There's a great article on the uncertainties of Alzheimer's research in today's Los Angeles Times. Two sentences in the article really capture how I've been feeling lately:
"In Alzheimer's research, lots of people seemed to have quit believing anything is wrong or right or crazy. Mainly, they shrug."
The article also talks about some preliminary research from Rush University that shows it's difficult to correlate plaques and tangles with dementia. News of this research adds to the suspicion that Alzheimer's is not a single disease, making promises of a "cure" less realistic.
I'm working with a group of people who have memory loss to start a registry that will document what prescription medicines, supplements and lifestyle changes (or combination of these factors) seem to help memory and thinking. While the information in this database will be self-reported and at times imprecise, we hope some patterns will emerge over time. We will make this information available to people with memory loss, their families and researchers.
If you're interested in participating in this registry, please email me at firstname.lastname@example.org and I'll let you know when the registry opens.